How do I know if palliative care is right for me?
Palliative care may be right for you if you have a serious illness. Serious illnesses include but are not limited to: cancer, heart disease, lung disease, kidney disease, Alzheimer’s, amyotrophic lateral sclerosis (ALS) and many more. Palliative care is appropriate at any stage of a serious illness. You can also have this type of care at the same time as treatment meant to cure you.
If you’re not sure, take the quiz.
What does the palliative care team do?
Palliative care (pronounced pal-lee-uh-tiv) is specialized medical care that focuses on reducing physical discomfort and stress of a serious illness. It is provided by a specially-trained team of doctors, nurses and other specialists who work together with your other doctors to provide an extra layer of support. The goal is to improve your quality of life.
To do this, the palliative care team will:
- Relieve your symptoms and distress
- Help you better understand your disease and diagnosis
- Help clarify your treatment goals and options
- Understand and support your ability to cope with your illness
- Assist you with making medical decision
- Coordinate with your care team
- Support the person with serious illness and those who help care for them
What can I expect from palliative care?
In short, you can expect that your quality of life will be improved. You will have reduced physical discomfort such as pain, shortness of breath, fatigue, constipation, nausea, loss of appetite and difficulty sleeping. You can also expect close communication and more control over your care.
Palliative care will help you carry on with daily life. It will improve your ability to go through medical treatments. And it will help you to match your goals to your treatment choices.
Will my insurance cover palliative care?
Palliative care may be covered by Medicare, Medicaid and most private insurance. Every financial situation is different in regard to who pays for palliative care, so we recommend you contact your plan to find out about any possible copays or deductibles as specifics will vary.
Do I have to give up my own doctor?
No. The palliative care team provides an extra layer of support and works in partnership with your primary doctor.
Can I have curative treatment together with palliative care?
Yes, absolutely. Your treatment choices are up to you. You can have palliative care at the same time as treatment meant to cure you.
Who else, besides the patient, can benefit?
Everyone involved! Patients as well as family caregivers are the special focus of palliative care. Your doctors and nurses benefit too, because they know they are meeting your needs by providing care and treatment that reduces your suffering and improves your quality of life.
Where do I get palliative care?
Palliative care is available in a number of places. More and more, palliative care is available outside of the hospital in the places where you live.
You, your doctor and the palliative care team can discuss outpatient palliative care or palliative care at home. Some hospitals also offer outpatient palliative care even if you have not been in the hospital. Check with your doctor. These include hospitals, outpatient clinics and at home.
Who provides palliative care?
A team of specialists, including palliative care doctors, nurses, social workers and chaplains provide this type of care.
How does palliative care help me choose the best treatment option?
The palliative care team will also spend time talking and listening to you and your family. They will make sure you completely understand all of your treatment options and choices. By deeply exploring your personal goals, the palliative care team will help you match those goals to the options. They will also make sure that your healthcare providers are coordinated and know and understand what you want. This gives you more control over your care.
When should I ask for palliative care?
You can have it at any age and any stage of an illness, but early in your illness is recommended.
Recent cancer guidelines say that cancer patients should receive palliative care early and together with their other treatments. People who are newly diagnosed with advanced cancer should receive a palliative care consult within 8 weeks of their diagnosis.
How do I get palliative care?
Ask for it! You have to start by talking with your doctor or nurse.
