Advance Care Planning Decisions

There are many decisions to discuss with family, loved ones, and healthcare providers regarding life-prolonging measures. Being informed about the options can help you decide what best supports your values and beliefs.

Graphic illustration of hands together for CPR chest compression

Cardiopulmonary Resuscitation (CPR)

Graphic illustration of IV bag

Artificial Nutrition and Hydration (ANH)

Graphic illustration of intubation

Help with Breathing

Graphic illustration of the dialysis process

Dialysis

Cardiopulmonary Resuscitation (CPR)

CPR is the combination of measures performed to attempt to get oxygen into your body and maintain blood circulation to the brain and heart in the event that breathing stops and/or the heart stops beating.

These measures may include: mouth-to-mouth resuscitation which may then require a bag, mask or a breathing tube. A tube may be put through the nose or mouth into the lungs in order to force air into your lungs. A ventilator or respirator (breathing machine) may be required as the next step.

Chest compressions are when the chest is forcefully pressed in order to pump blood from the heart into the rest of the body. Electric shock (defibrillation/cardioversion) may be used in an attempt to restore normal heart rhythm. Medications may be used to help restore normal heart rhythm and blood pressure.

How Effective is CPR?

  • The effectiveness of CPR depends on previous health, the cause of cardiac arrest and how soon CPR is performed after the heart or breathing stops.
  • The survival rate for CPR decreases when there are multiple illnesses present.
  • CPR will not cure an underlying disease but may restore heartbeat and breathing.
  • CPR is not likely to be beneficial if advanced life-threatening illnesses are present.
  • Cardiac arrest is usually the final step in the body’s natural process of aging leading to death.

CPR Survival Rates

  • The evidence overwhelmingly shows that CPR is not able to restore most people who are at the end of a life-threatening illness to their previous level of functioning. On television, CPR is not shown quite accurately—in real life, the process is more intense with lower success rates. When a person is in failing health from a serious or progressive illness, CPR has little chance of success. Results may be only partially successful and temporary.
  • CPR for hospitalized individuals is associated with poor outcomes, as the cause of arrest is usually associated with advanced chronic illness rather than an easily reversible heart or breathing failure.
  • Even if CPR is successful, there may be lasting health complications including, but are not limited to: ventilator use from weakened lungs, bruised/broken ribs from chest compressions, and brain damage from lack of oxygen.
  • Resuscitation can save lives but factors like age, health, and underlying illness, can affect the outcome. It is best to discuss your goals for resuscitation with your healthcare professional to understand more about the risks and benefits of such actions.

Artificial Nutrition and Hydration (ANH)

ANH is a treatment intervention that delivers nutrition and fluids (hydration) by means other than a person taking something in his/her mouth and swallowing it. The nutrients and fluids used for treatment are chemically balanced and delivered through a feeding tube placed in the gastrointestinal tract or by intravenous (IV) administration.

While artificial nutrition and hydration can help people recover from illness or surgery, it can increase suffering for people at the end stages of life. For individuals near the end of life, ANH is unlikely to prolong life and can potentially lead to medical complications and increase suffering. When individuals can no longer eat or drink, it usually means their organs are shutting down. Their bodies cannot function the way they did when they were healthy and artificial nutrition and hydration cannot return them to a healthy state.

Decisions about ANH need to be based on an impartial look at what, if any, benefits will occur, what side effects and burdens are likely to occur, and what the individuals’ and families’ goals are for the treatment.

Help with Breathing

Shortness of breath or breathlessness (dyspnea) is common in people with serious or advanced illness. It makes breathing difficult and uncomfortable and it can cause a lot of suffering. Dyspnea can be distressing for both the individual who has it and their family so it is important to understand the scope of this symptom and the ways it can be treated.

There are many causes of dyspnea. It can occur due to lung problems such as chronic obstructive pulmonary disease (COPD). It can be a symptom of other health problems such as heart disease, cancer, or neuromuscular disease. And it may occur as any terminal illness gets worse.

The main goal of treatment is to help the person breathe more comfortably. To do this, medicines and other therapies are often used including: oxygen therapy through a nose cannula or mask, medication to ease pain, and other medicine to relieve problems that can occur with dyspnea such as anxiety.

Intubation with ventilation is for individuals who are severely ill and not able to breathe well on their own. It is used when other methods of treatment are no longer working. The procedure is performed in the hospital and the individual will remain in the intensive care unit (ICU) throughout the ventilation process.

With intubation, a tube goes into your mouth or nose, down your throat and into your windpipe. It is connected to a machine called a ventilator which pushes oxygen into your lungs to help you breathe and sustain your heart and kidneys so they can work properly. You cannot speak or swallow. Because this tube can be quite uncomfortable, people are often sedated with very strong intravenous medicines. Being on a ventilator is an aggressive treat which inhibits your ability to talk or swallow.

If the person needs ventilator support for more than a few days, the doctor might suggest a tracheotomy. This tube is then attached to the ventilator. This may not require sedation but can carry risks, including a collapsed lung, a plugged tracheotomy tube, or bleeding.

Survival with mechanical ventilation depends not only on the factors present at the start but also on the development of complications and individual management in the intensive care unit.

The use of ventilation during end-of-life care should be evaluated by carefully considering the goals of care and discussing with loved ones and your healthcare professional.

Dialysis

Dialysis is a treatment used when your kidneys are no longer working. One essential job of the kidneys is to filter excess fluid and waste products out of your blood so that they can be eliminated from your body. When this function is inhibited, dialysis must be used. In dialysis, you will be hooked up to a machine that slowly removes blood and filters it, then recirculates it back into your body. This process of being connected to a machine occurs for several hours, multiple times per week. Dialysis can be a temporary measure, but if your kidneys have failed, you will need to have dialysis treatments for your whole life.

Dialysis does increase your chances of living longer with kidney impairment. The treatment will allow you to feel better and more mentally alert. Although dialysis can be beneficial, there are some obstacles. It can be burdensome and inconvenient to receive treatment. Additionally, as a ‘treatment’ and not a replacement for normally functioning kidneys, there may be times when you may feel unwell. Dialysis patients also have to closely monitor their diet and fluid intake to not cause complications.

Stopping or not starting dialysis is called “conservative care” or “medical management.” This type of care can meet different goals depending on your specific needs and overall health. It can involve managing symptoms with certain medicines and diet. This approach is also known as “palliative care.” Talk with your healthcare professional for more information.

Icon of Let's Talk
LET'S TALK
Icon of 4Step iCare Plan (grey)
4Step iCarePlan
icon of NJ POLST
NJ POLST